Lipedema Treatment in Young People

This Interest Group is for parents, patients and professionals interested in diagnosis and treatment of lipedema in young people.

Lipedema Education Group (LEG) is developing a Lipedema Treatment in Young People Best Practice Guide for medical professionals (with Dr. Iker) and coordinated guides for parents and children.

Our goals include:

  • Early and accurate lipedema diagnosis.

  • Treatment and self-care to minimize lipedema symptoms and progression.

  • Information and support to build psychological resilience.

  • Collecting data to support research into curing lipedema.

Our guides will explain:

  • How health care providers can diagnose and treat young people.

  • Self-care recommendations including nutrition, exercise, and more.

  • Techniques for encouraging behavior change.

  • Record keeping to track progress.

  • Psychological support.

Please:

  • Join the Lipedema in Young People space in our community; you may have to Sign Up first if you do no have an account. We will notify you when our information is ready and we can schedule a meeting.

  • When our Best Practice Guides comes out give a copy to each child’s health care providers and follow our consumer guides.

Disclaimer: This offer does not include medical advice or medical treatment. Participants should make their own health care decisions in cooperation with their care team.