About
Lipedema.com
Lipedema.com provides support, education, and advocacy for people with lipedema, lymphedema, and Dercum’s Disease as well as their friends and family, and health care providers.
Website support is provided by Lymph Notes. We are working on making Lipedema.com, Lipedema Education Group, and Lymph Notes into a nonprofit organization, see LymphNotes.org for details.
Some team members work worked together on multiple projects including the US Standard of Care Committee for Lipedema and the Lymphedema and Lipedema Nutrition Guide.
Chuck Ehrlich, MS, MBA
Chuck Ehrlich is the leader of the Lipedema Education Group and a researcher, writer and publisher for Lymph Notes. He has been studying nutrition and lymphedema since 2005. His background includes explaining many complex topics, teaching, and consulting. He received his MS from Case Western Reserve University and his MBA from University of San Francisco.
Kasi Grosvenor, MBA
Kasi is a lipedema patient and advocate for diagnosis and treatment of lipedema and related conditions. Since her lipedema diagnosis in 2021 Kasi has regained her mobility, improved her quality of life, and lost over 100 pounds through conservative therapies, lifestyle changes, and lipedema reduction surgeries. Kasi leverages decades of business experience in Project Management and Human Resources to contribute to lipedema advocacy and awareness via multiple organizations including Lipedema Foundation, Lipedema Education Group, and Lipedema.com. Follow her journey on her Blog, LinkedIn, and Instagram.
Emily Iker, MD
Emily Iker understands lymphedema on a personal level as a cancer survivor, lymphedema patient, and medical specialist. She received her MD from St. George’s University and advanced training in physical medicine, rehabilitation and holistic medicine. She specializes in diagnosis, management and treatment of lymphatic disorders at the Lymphedema Center in Santa Monica, California.
Linda-Anne Kahn, CMT, NCTMB, CLT-LANA, CCN
Linda-Anne Kahn is a nationally certified massage therapist and lymphedema therapist with over 30 years of experience. She has certifications as a Manual Lymph Drainage Therapist and Lymphedema Specialist from the Dr. Vodder School in Austria, the Foeldi Clinic in Germany, Drs Judith and John Casley-Smith in Australia, and the Lymphology Association of North America (LANA). She is also a certified Aromatherapist, CIDESCO Beauty Therapist, nutritional consultant, and integrative health coach. She practices at Lymphatic Therapy Services in San Diego.
Cristina Lella
Lipedema patient and awareness advocate.
Susan O'Hara
Susan empowers women with lipedema as a social media advocate, author, and entrepreneur. She uses her blog (www.LegsLikeMine.com) and other social media to create supportive online spaces where women with lipedema can connect and learn. Her seven lipedema books (so far) offer guidance and hope to women navigating lipedema, along with knowledge and experience from her own journey. Based on her commitment to providing practical solutions that improve quality of life, she is starting a company that will provide footwear specifically designed for people with lipedema or lymphedema.