Resources
Websites and organizations:
American Lymphedema Framework Project www.alfp.org
Canadian Lymphedema Framework www.canadalymph.ca
Fat Disorders Resource Society www.fatdisorders.org.
International Lipoedema Association (ILA) www.theila.net
International Lymphoedema Framework www.lympho.org
Journal of Lymphoedema (Wounds International) www.woundsinternational.com/journals/latest-issue/journal-of-lymphoedema
Lipedema Foundation www.lipedema.org
Lipoedema Australia www.lipoedemaaustralia.com.au
Lipoedema UK www.lipoedema.co.uk
Best Practice Guidelines for the Management of Lipoedema: https://www.lipoedema.co.uk/wp-content/uploads/2017/05/WUK_Lipoedema-BPS_Web.pdf
Distinguishing Lipedema, Lymphedema and Obesity guide for clinicians: https://www.lipoedema.co.uk/wp-content/uploads/2022/01/LUK-Booklet-A5-WebV3.pdf
Lipedema World Alliance https://lipedemaworldalliance.com/
Lymph Notes www.LymphNotes.com. Online resource directory, practical information, and books.
Lymphatic Education & Research Network www.lymphaticnetwork.org
Lymphedema Advocacy Group/Lymphedema Treatment Act.org lymphedematreatmentact.org
National Lymphedema Network (NLN) www.lymphnet.org.
Books:
Living Well With Lymphedema by Ann Ehrlich, Alma Vinjé-Harrewijn, PT, CLT-LANA & Elizabeth McMahon, PhD (Lymph Notes, 2005). Lymphedema patient’s handbook.
Lymphedema Caregiver’s Guide by Mary Kathleen Kearse, PT, CLT-LANA, Elizabeth McMahon, PhD, & Ann Ehrlich (Lymph Notes, 2009). How to provide or arrange home-care.
Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon, PhD (Lymph Notes, 2005).
Voices of Lymphedema edited by Ann Ehrlich & Elizabeth McMahon, PhD (Lymph Notes, 2007). Inspirational teaching stories by people with lymphedema or lipedema and therapists.
100 Questions & Answers About Lymphedema by Saskia R.J. Thiadens, Paula J. Stewart, Nicole L. Stout (Jones & Bartlett Publishers, 2009).
Portions adapted from Lymphedema and Lipedema Nutrition Guide, Lymph Notes 2016 by permission of the publisher.