Advocacy Interest Group

This group is for all lipedema, lymphedema or Dercum's Disease advocates. Join to cooperate with your peers and Susan O'Hara, author of "Empowered Legs: A Guide to Lipedema Advocacy and Awareness". Related groups may be added in the future to coordinate efforts focusing on specific issues or targets.

Are you interested in advocacy?  From sharing your own story all the way to educating legislators and everything in between, there's a place for everyone to be an advocate.  Joining our supportive online group, you to learn a variety of ways to advocate for better healthcare access and raise awareness for lipedema patients. Together, we can make a difference in their lives.

Please:

• Sign up for a free account by following the instructions on our Community Welcome Page; if you have not yet done so. Members who joined Lipedema.com before April 15, 2024 will need to create a new community account.

• Join the Advocacy Interest Group space in our community.

We will provide more information as soon as it is ready.